Big B, my middle red, was born on November 16, 2006, at a very healthy 8 lbs
14 oz. He looked gigantic next to the other babies in the nursery, and was a
handsome little redhead. We noticed right away that he had two small spots on
his stomach. When we mentioned it to the doctors and nurses, they thought the
spots were birthmarks. So we took him home, excited to have a new baby
boy.The first few days proved to be very scary, as we watched our baby boy develop strange symptoms. He began to flush, out of nowhere, on his entire body. It would start right around his nose, and spread slowly until his whole body was red as a tomato, and when he did this, he would squirm and cry and seem like he was in lots of pain. Soon after that we noticed blisters on the spots. This was in just the first 3 days after bringing him home. We brought him in to the pediatrician, and they thought it was inpetigo. When the cream didn't work, they gave us a referal for the dermatologist.
When we called the dermatologist, they said B couldn't be seen for 4 months. We described his symptoms and how worried we were, and the best they could do was put him on the cancellation list. So we prayed, and our prayers were answered because the next day, they called back and asked if we could come the next day. And when we brought him in, the dermatologist knew right away what he had: mastocytosis, a rare blood disorder where the mast cells contain too many histamines that have to be released into the skin and cause spots, flushing, and blistering. We were reassured that his spots, thought they would continue to spread over his body, would slowly fade until he reaches adolescence.
We love having Big B in our family and hope to touch the lives of others who have children with mastocytosis as we share our stories about him.
Posts about Blake: go here.
Posts
It is amazing how we deal with health issues with our kids, but they become part of our every day. Keep rocking on, mom, you've got this. Our kids have health issues, too, but somehow every day we go on. I hope you feel uplifted and know other people understand how hard it is, but kudos to you in staying the strong mom you obviously are. <3
ReplyDeleteThanks for reaching out. I love hearing from moms who know what it's like! :)
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ReplyDeleteMy husband was diagnosed with systemic mastocytosis last year and did go to the NIH and see Dr. Robyn twice. He had already had the bone marrow biopsy and aspiration, as well as the tryptase level test. Basically, they did some blood work there and took extensive medical history from my husband. They told us to go home and our local physician could follow up with him as well as anyone could since there are really no specialist doctors to see locally. They said if there were changes to follow up in about a year. He did go back about a month ago and found out that Dr. Robyn was going to leave. We made a research on local herbal medicine and we found out there is a cure with natural herbs and roots medicine.Of Dr James the great herbal doctor from west Africa, on how he uses his herbal medicine to cure several diseases like SHINGLES,WARTS, HERPES,CANCER,HEPATITIS,DIABETES HIV/AIDS,AND MASTOCYTOSIS,and we proceeded and contacted him on his email Drjamesherbalmix@gmail.com..and he said he will help us. 2 days later you told us the herbal medicine is ready and he sent it to us.After 3 weeks of the usage as he prescribed to us.believe me my husband was truly cured of Mastocytosis.You can reach the Herbal Doctor on Drjamesherbalmix@gmail.com or you get in touch with me on Ntrishanelson@gmail.com
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